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Taking medication just got easier!

Our series of Medication Fact Sheets is designed to help patients and their families

Find trusted, clear information about commonly prescribed IBD medications, designed specially for patients and their loved ones. Plus additional resources to help with pill swallowing, needle phobia and understanding biosimilar medications. 

Available in English, French, Spanish and Arabic, where available. Sheets will be added and updated as needed. 

Download medication fact Sheets

Research to improve the health of children with IBD.

CIDsCaNN members are doctors, scientists, and other health professionals from across Canada working together on IBD research, education, advocacy, and mentorship. We welcome you to read more about our research methods and outcomes. 

Research Summaries

IBD Top 10 Unanswered Research Questions

Vidéo en Français
View Infographics
More Information

Patient Information

Top 10 Unanswered research questions
Top 3 Answered Research Questions
IBD Doesn't Define Me (book)

IBD Top 3 answered research questions

YouTube Links to Videos

Video 1: Speak up! Is there genetic testing for IBD?

Video 2: Speak up! Genetic testing and pediatric IBD. What do we know?

Video 3: Speak up! How does IBD, and its treatments affect puberty and growth in children with IBD?

Video 4: Speak up! How is colon cancer related to IBD?

Video 5: Speak up! How can you help advance IBD research? (full video)

Playlist with all videos: Link to playlist

IBD Doesn't Define Me Book

This book is a collection of stories from patients living with IBD and their struggles and triumphs when coming to grips with their diagnosis.  

IBD Doesn't Define Me (pdf)Download

IBD TOP 10 UNANSWERED RESEARCH QUESTIONS

What

Using an established research process developed by the James Lind Alliance (JLA) in the United Kingdom, our research team sought to identify and prioritize the top 10 unanswered questions related to the causes and management of pediatric inflammatory bowel disease (IBD). At the core of the JLA process, is meaningful engagement of patients, caregivers and health care professionals.

Who

The steering committee brought together patients, caregivers, physicians, allied health professionals, and representatives from relevant national organizations. This collaborative research effort was led by Dr. Anthony Otley, on behalf of the Canadian Children Inflammatory Bowel Disease Network: A Partnership with the CH.I.L.D. Foundation, consisting of 12 pediatric IBD clinics in children’s hospitals across Canada.

When/Where

A final priority setting workshop was held in Toronto on March 28th, 2017. The workshop consisted of patients, caregivers and clinicians. They were tasked with prioritizing the top 10 unanswered questions about pediatric Inflammatory Bowel Disease they would like the research community to address.

Why

To ensure that the research priorities of people directly impacted by pediatric IBD are identified, and by doing so, to help set the stage for a sustainable patient engagement agenda across the Canadian Children IBD Network to improve research.

How

Check out our #IBDTop10 e-magazine to learn more about the process!

Results

The Top 10 questions according to the pediatric IBD community:


10. What is the optimal approach to diagnosis (education, psychological support, diagnostic tests) in pediatric patients with IBD?

9. What is the impact of access to psychological/mental health support in the management of pediatric IBD?

8. How does an early diagnosis of IBD in childhood/teenagers impact the lifeling course (prognosis) of the disease?

7. What are the long term effects of medications used to treat IBD?

6. How can we increase the knowledge and/or awareness around pediatric IBD so that diagnosis is not delayed?

5. How can we better define the role of, and improve access to, newer non-invasive, less costly, biomarkers of IBD endoscopic activity?

4. What triggers flare ups in IBD?

3. What role does diet have in the management of IBD?

2. Can IBD be prevented?

1. What are the causes of IBD (Crohn’s disease, ulcerative colitis)?​​

The Canadian Children Inflammatory Bowel Disease Network

555 University Avenue,

Toronto ON

Canada M5G 1X8

email: info@cidscann.ca


Copyright © 2019 The Canadian Children Inflammatory Bowel Disease Network - All Rights Reserved.


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